euthanasia
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It can't happen here...can it?
An Inspiring and Provoking Book
A must read!
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Who Cries for the Different?
Disturbing, researched account of beginnings of HolocaustHenry Friedlander does an excellent job of writing and researching into the lives and minds of the doctors and administrators who ran the secret programs that killed first, German children who were born with disabilities, then led to the removal from schools and homes of older children with disabilities to meet their deaths through starvation and drugs, and finally to include adults with disabilities in mass murders. It was on these people that the Nazis perfected their instruments of genocide, and yet, even at Nurenburg their suffering was dismissed as "lives unworthy of life" just because of their disabilities.
This can happen again, especially with the completion of the human genome. NO laws have been suggested to curtail the use of information gleaned from the genome to prevent discrimination of any kind against the disabled. It is of great concern that the disabled community watch opponents of the Americans with Disabilities Act try to get this civil rights act revoked as being expensive, especially since it serves those who many (including Clint Eastwood apparently) feel are not productive members of society. The slippery slope begins at this point, and with these mindsets.
It is imperative that students of medicine and students of science be made to read this book. It is only through education and remembering the children and families whose lives were destroyed that we can avoid allowing this Medical Holocaust from ever happening again. Karen Sadler, Science Education, University of Pittsburgh
What we don't remember can kill us.Of the killing centers, Hadamar is the best known -- a hub, so to speak. Nobody really knows how many people were gassed there. The buses arrived like clockwork, on schedule... Day in; day out.
Significantly, there was little civilian protest until T4 moved on to private Christian instutions. The "euthenasia" program was halted "officially" after several churches protested the gassings of institutionalised patients. (Unofffically, the program went on until AFTER the end of the war!) The members of T4 were absorbed into the killing machine known as the Final Solution. Which, of course, was the goal all along....
I reread The Origins of Nazi Genocide periodically just to remind myself that ANYONE can be marginalised -- including me and thee.

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Fab book
Unique Insight
Couldn't put it down!
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At last!
At last!
At last!
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Comprehensive and compassionate in its approach
An Extremely Helpful Handbook on Moral Issues of Euthanasia
A great book that clearly identified the issues.
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Recent technological and medical breakthroughs have--in a relatively short amount of time--extended the average age of death from 46 to 80 years of age. The lingering, debilitating diseases of old age have become the norm; technology and medicine continue to dazzle, prolonging life without considering the issue of its quality. That search for quality propelled Marilyn Webb, editor in chief of Psychology Today, to travel the country for six years, collecting stories and information that reflect every angle of the subject. She examined the range of care and values in places ranging from tiny hospices to major metropolitan medical centers. She interviewed 300 physicians, nurses, and health care workers, even such luminaries as Elisabeth Kübler-Ross and Kervorkian himself. She let conflicting views air: theologians versus Christian clerics; those in the Hemlock Society against pro-life conservatives. She sought out compelling, personal stories--the good, the bad, and the ugly--and analyzed the pressing issues that had begun to reshape our thoughts about death, including the legacy of Karen Ann Quinlan.
The Good Death can be read straight through or mined for the lessons taught by various aspects of the issue. Whatever your approach, you'll want to spend time with The Good Death, whether relishing or reeling from the stories or just pondering the values that shape the culture of death.

Many views of dying in AmericaWhen I started reading books on dying (Final Gifts by Maggie Callanan, Patricia Kelley; The Grace in Dying by Kathleen Singh), I read books that gave me hope and comfort in dealing with my own mortality. This book made the hair on my neck rise up.
It begins by shattering illusions (the ones I'd built up) about having a pain-free, easy death. There are insurance companies, personal opinions, differing agendas of a variety of institutions that come into play.
In short, some people have an easier death than others. Webb writes in an easy to read, article style. She begins with a chapter called "Dying Easy", about the nearly beautiful, fairly comfortable death of Judith Hardin, who at 36 dies at home with her husband and children.
"Dying Hard," is based on Webb's personal interviews and experiences with the death of Peter Cicione. Cicione died a death more painful than it needed to be, largely due to medical staff's fears that this dying man was misusing morphine, might overdose or use so much medication that the drugs would no longer be effective (not true).
In "The Sorcerer's Apprenctice" and "When Death Becomes a Blessing," Webb focuses on the history of medical control of pain, the prolonging of life with new medical techniques and modern pain control through the works of Dr. Kathleen Foley, director of neurology pain service at Memorial Sloan-Kettering Cancer Center. Foley estimated that 5% of the patients she was seeing were "in unassuageable pain." Webb's conservative estimate offers that "109,500 people a year die with unrelieved suffering." Much of this is due to outdated information, old rules, and misunderstandings about how much medication a dying person in severe pain can and should get. She offers the possibility that terminally ill patients who want to commit suicide or look for assistance in dying might not do this, if their pain could be properly handled.
She has chapters about the legal conflicts for families who want comatose relatives off of life-support systems, with detailed information about Karen Quinlan and Nancy Cruzan's cases and the affects on their families long after these women died.
"Bearing the Burden" focuses on what happens to the lives of families with a terminally ill member - "The sad secret that many don't want to admit is that care at home, wonderful as it can be in helping a patient to a good death, is hard on families. Home care may allow for those close, intimate, late-night times with the dying family member...but there are also the difficult times: changing diapers, losing sleep or feeling intense anxiety because the patient is in pain or can't breath..."
This first half of the book is tough reading, but necessary - for there is still a lot of work to be done to make dying easier. The second half of the book deals with hospice; assisted dying (suicides); spirituality in dying.
She closes with 10 common factors 'good deaths' have - 1) open, ongoing communication with doctors, patients, families 2) preservation of the patient's decision-making powers for as long as possible 3) sophisticated pain control 4) limits on excessive treatment (medical interventions, per the patient) 5) focus on preserving the patient's quality of life 6) emotional support 7) financial support 8) family support 9) spiritual support 10) patient isn't abandoned by the medical staff even when curative treatment is no longer required.
She also has 10 changes, which she believes need to be made to change the culture of dying from a cold, hospital-set detachment to a family affair. These encompass everything from expanding health insurance to cover needs currently not met, to legalization of assisted suicide.
If you have given little thought to some of the darker sides of dying, focusing as I have on the spiritual and more uplifting side, this book offers a lot of food for thought. Well-written, easy to read, disturbing.
Even if you have different opinions than Webb has (about assisted suicide, for example), this book is a good read to investigate the other side's information and arguments.
Entheogens: Professional Listing
Important information everyone should know!
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I love this play
The most compelling piece to read. Even better to perform!
An excellent play about our dealings with death
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"Three patients" or America's preoccupation with autonomyA fundamental problem - As the population ages and life may be "artificially" extended with the use of sophisticated and often expensive technical support, ICU availability and costs have become an issue of growing public importance and concern. Dr Crippen created three hypothetical patients and asked critical care providers from all over the globe to offer their comments on their management. The result is this remarkable book which is surprisingly easy to read despite the use of specialized terminology. Different perspectives based on different cultures and socioeconomic backgrounds emerge as the reader proceeds. A physician from South Africa describes the huge demand for ICU beds and the limited availability. Physicians from India and Russia underline the importance of the patient's social and financial status and what impact this may have on future decisions related to hers/his critical care. A physician from the Netherlands describes the universal coverage health system available in his country and how the decision for further care rests primarily on the physician's medical judgment. A physician from Israel tries to achieve a balance between religious constraints and futile care. And at the end of the book, non-physician critical care providers contribute with vivid descriptions of pertinent cases and with their perception of futility. Among them, a hospital chaplain describes how she helps her patients deal with the fear of the incoming inevitable death by bringing them closer to a picture of a God who is love, mercy and compassion instead of fear, punishment and revenge.
It is evident throughout the book that one of the major issues shaping critical care costs and distribution in the USA is unlimited patient autonomy and overzealous litigation. Increased physician mistrust on behalf of the patients is stated as a major cause of this phenomenon. Whereas many physicians outside USA would assume a role conceived as paternalistic for the USA standards, patients in the USA are often offered a menu of available option regarding their future critical care treatment ("Mr. Jones, in case your breathing worsens do you want us to proceed with mechanical ventilation? In the event your heart stops, do you want us to start chest compressions?" and so on... )
Under the editing of Dr's Crippen, Kilcullen and Kelly a balance and an answer is sought. It is not an easy task but the team involved is one of the best international teams available. I highly recommend this book. It underlines once again the concept that a good question is often more important than the answer.
And this little treatment is just right!"There is only one way to explain the birth of this book. That is CCM-L..., an electronic bulletin board that is devoted to critical care medicine), and Dr. David Crippen, one of the book's editors. An avowed nonconformist and refugee from the 1960's, Dr. Crippen has connected intensive care unit (ICU) physicians from around the world by means of the Internet. He has singlehandedly, without commercial sponsorship, woven a network of international intensivists. Nothing like this has ever occurred before. All readers of this book are being treated to a unique experience."
I might add a historical irony. One of Dr. Crippen's ancestors was Dr. Hawley Harvey Crippen. This man was the first criminal to be arrested in 1910 via the use of wireless technology. The earlier Dr. Crippen had murdered and disposed of his wife, then sought escape by going on an ocean liner with his mistress (disguised as his 12 yr. old son). The Captain grew suspicious (he saw the "father and son" holding hands and appearing amorous) and wired back to shore. This then led to a spectacular arrest as a member of Scotland Yard traveled on a faster ship and arrived in time to board and arrest Dr. Hawley Crippen. The papers at the time had a field day and this case was part of the "inspiration" for the Alfred Hitchcock film "Rear Window" starring James Stewart, Gene Kelly, and Raymond Burr. Now at the turn of another century we have yet another Dr. Crippen again making history via the use of a new "wireless" technology-- the internet. And the issue of death is involved. But instead of the sensational and criminal death of one person, we have the issue of death and dying in ICU's all over the world.
The four issues interwoven and discussed throughout the book are 1) patient autonomy, 2) beneficence (providing benefit), 3) nonmaleficence (doing no harm), and 4) distributive justice. Does patient autonomy imply not only the right to refuse treatment, but also to insist upon whatever aggressive therapies they may desire (and may have looked up on the internet)? Could we provide more benefit by trying to ease suffering during the end of life as opposed to prolonging life by a matter of days to weeks? To what extent do patients, on the surface appearing calm and sedated, actually suffer as we apply futile resuscitation efforts in their last days? If we are to formally apply some legal formula for the just distribution of critical care resources, is this a decision best left for medical professionals? Or is it a political and ethical decision for the public at large? Those looking for easy and short answers to these questions will be disappointed with this book. Many of the chapter's authors take divergent viewpoints.
What I found interesting was how several authors pointed to a historical trend in the USA. In the old fee-for-service era, when all provided technology and service was very lucractively billed, it was the families whom were going to court to have futile life support terminated. Now, in the new era DRG's, capitation & shrinking reimbursement, it is the hospitals and MD's whom are seeking to legally no longer provide futile care. This seems to imply that there has always been an economic foundation as to the determination of what constitutes "futile care". If we are discussing the compassionate and just application of medical technology and service then "futile care" may be seen as one thing. If we are talking about the provision of billable medical services then "futile care" may be seen as quite something else.
If this book has any one failing in my opinion it is that the issue of Palliative Care isn't addressed adequately. I feel this issue warranted a full chapter at least. While "palliative care" was mentioned in passing by several contributors, a more in depth look at the international differences would have been quite revealing. In many countries Palliative Care is it's own specialty. "Doing everything" is usually meant to do everything in regards to prolonging life, not doing everything to ensure a good death-per many of our default biases. Indeed a recent SCCM pamphlet I received in the mail, titled "ICU, Issues and Answers" and meant for family members of ICU patients, answers the question ""What is meant by 'doing everything' with the following.
"'Doing everything' implies tht any and all appropriate therapies will be utilized in order to preserve life." The pamphlet goes on to describe how MD's aren't required to offer therapies that would be medically ineffective. But what if we expanded our definition of "doing everything" to include effective and compassionate end of life care. That care may not be "critical" in the technological sense, but certainly it is "intensive" from the standpoint of patient need and clinician time, energy, and professionalism.
One chapter is by an RT and is titled "Advanced Medical Technology and End of Life, A Respiratory Care Practitioner's Perspective by David Walker, MA RRT. Mr. Walker eloquently describes a "day in the life" of a Respiratory Therapist.
Another chapter is titled "End of Life Care in the Intensive Care Unit" by Gabriele Ford CCRN. Ms Ford paints a rather disturbing picture of what it is like to oversee the provision of futile care.
This is one of the most interesting and riveting books I've read in a while. It is a book which deserves to be both read over again as well as passed around. No ready-made solutions pop out of the book, but I assure you that your cerebral matter will be quite stimulated.
Put this on your list!
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A must read book on the subject
Best resource I've seen
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Another Masterpiece By Scott PeckAs is true of all of Peck's books, however, I found myself enthusiastically agreeing with 95% of everything he wrote and vehemently disagreeing with the remaining 5%. He approaches the spiritual aspect of the debate from a purely liberal Christian perspective (and the political elements of it from a similar perspective) and so makes some statements that I couldn't help but challenge. For example, he considers the purpose of life to experience the emotional and physical pain necessary to mature us spiritually and, hence, considers any effort to end ones own life an attempt to short-circuit the process. He considers the dying process to be an important part of the learning process and gives many examples from his personal experiences that show the positive results of doing the "hard work" involved in dying. However, he admits himself that many people-in fact, perhaps most-seem to gain nothing from the experience and leave this world kicking and screaming, seemingly challenging the notion that the process of dying is inherently useful as a tool of spiritual growth. Also, his contention that the soul "belongs" to God since he is its creator not only clearly betrays his thoroughly Christian perspective, but is unsubstantiated by anything more than his own assumption. I was a co-creator in the creation of my sons but I never considered them my property because of it. As a consequence, I don't follow his logic in this regard.
My only significant criticism of the book is the ending, in which he seems to waffle all over the place. After 200 pages of building his case, I was disappointed to see him retreat with the excuse that he was going to let the reader decide for themselves on the issue, but then I guess that's the point of any work of this nature. The decision when and how to end one's own life is a personal choice that can be made only by those who find themselves in that situation. It can't be made by religion or government or even by science, and that, after all, is the truth of all life. Peck gives us something to think about, but we must ultimately make the final decision which is, I suspect, exactly the way God wants us to play it. In any case, thank you Dr. Peck for another little gem of light to help us illuminate an otherwise horribly confused world.
A New Perspective
Searching for the soulHe distinguishes between pain and suffering - how pain can and should be alleviated, and why it should not be the cause of seeking a quick death.
His book is important for those who will face death, either themselves or in others. It is a brave attempt to clear the conflict regarding euthanasia.